Demystifying Disability Bibliography


United Nations. “Factsheet on Persons with Disabilities.” Accessed August 9, 2020.

Chapter 1

 ADA National Network. “Guidelines for Writing About People With Disabilities.” 2018.

Boren, Cindy. “A high school in North Dakota calls its teams the ‘Midgets.’ Activists want that changed.” Washington Post, December 12, 2019.

Brown, Lydia X.Z. “Ableism/Language.” Autistic Hoya (blog), accessed August 9, 2020.

Brown, Lydia X. Z. “Identity and Hypocrisy: A Second Argument Against Person-First Language.” Autistic Hoya (blog), November 28, 2011.

Cara Liebowitz, interview with author via Facebook Messenger, August 2019.

Cohen-Rottenberg, Rachel. “Doing Social Justice: Thoughts on Ableist Language and Why It Matters.” Disability and Representation (blog), September 14, 2013.

Ellen Ladau, interview with author, August 2019. West Babylon, NY.

Gardiner, Finn. “The Problems with Functioning Labels.” Thinking Person’s Guide to Autism (blog), March 23, 2018.

Imani Barbarin, interview with author via email, December 2019.

Jenny Lay-Flurrie, interview with author via email, May 2020

Kayla McKeon, interview with author via email, December 2019.

Lawrence Carter-Long, interview with author via email, May 2020.

Liz Weintraub, interview with author via email, May 2020. Dictionary, s.v. “disability,” accessed August 9, 2020,

National Center on Disability and Journalism. “Disability Language Style Guide.” Accessed August 9, 2020.

Noor Pervez, interview with author via email, December 2019.

Rebecca Cokley, interview with author via email, January 2020.

Taylor, Jordyn. “If You Care About Mental Illness, It’s Time to Stop Saying ‘Crazy’ and ‘Insane.’” Mic, June 24, 2016.

United States Department of Justice Civil Rights Division. “Americans with Disabilities Act of 1990, as Amended.” Last modified June 15, 2009.

United States Department of Labor. “Frequently Asked Questions.” Accessed September 7, 2020.

Chapter 2

Alaska Mental Health Consumer Web. “Models of Disability: keys to perspectives.” Accessed August 9, 2020.

Center for Disability Rights. “Did You Know? Invisible Disabilities.” Accessed August 9, 2020.

Centers for Disease Control and Prevention. “Disability and Health Overview.” Last modified September 4, 2019.

Crenshaw, Kimberlé. “Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics,” University of Chicago Legal Forum: Vol. 1989, Issue 1, Article 8. 139-167.

D’Arcee Neal, interview with author via video call, May 2020.

Degener, Theresia. “A human rights model of disability.” In Routledge Handbook of Disability Law and Human Rights, edited by Peter and Eilionóir Flynn. New York: Routledge, 2017.

Edison, Laurie Toby and Debbie Notkin. “Guest Post: Temporarily Able-Bodied: Useful, but not always true.” FWD/Forward (blog), February 3, 2010.

Emery, Crystal R. “I Am a Black Woman With a Disability. Hear Me Roar.” Time Magazine, July 20, 2016.

Invisible Disability Project. “Invisible Disabilities Defined.” Accessed August 9, 2020.

Lee, Andrew M. I. “The 13 Disability Categories Under IDEA.” Understood. Accessed August 9, 2020.

Mobility International USA. “Models of Disability: An Overview.” Accessed August 9, 2020.

National Educational Association of Disabled Students. “Making Extra-Curricular Activities Inclusive.” Accessed August 9, 2020.

Retief, Marno and Rantoa Letšosa. “Models of disability: A brief overview.” HTS Teologiese Studies/Theological Studies 74, no. 1 (March 2018).

Richards, Penny L. “In Search of….the first TAB.” Disability Studies, Temple U. (blog), May 5, 2007.

Scope. “Social model of disability.” Accessed August 9, 2020.

Sandy Ho, interview with author via email, September 2019.

United States Bureau of Labor Statistics. “Persons with a Disability: Labor Force Characteristics – 2019.” February 26, 2020.

University of Leicester. “The social and medical model of disability.” Accessed August 9, 2020.

Chapter 3

ABLE National Resource Center. “About ABLE Accounts.” Accessed August 10, 2020. “Remarks of President George H. W. Bush at the Signing of the Americans with Disabilities Act.” July 26, 1990.

ADAPT. “We will ride! – The Gang of 19.” Accessed August 10, 2020.

Al-Mohamed, Day. “Black #Disability History: Major Owens, Unsung Hero of the Americans with Disabilities Act.” Lead On Network, February 1, 2016.

Alemdaroğlu, Ayça. “Eugenics, modernity and nationalism.” In Social Histories of Disability and Deformity: Bodies, Images and Experiences, edited by David M. Turner and Kevin Stagg. New York: Routledge, 2006.

Antonios, Nathalie and Christina Raup. “Buck v. Bell (1927).” Embryo Project Encyclopedia. January 1, 2012.

Associated Press in Washington. “US Senate rejects UN treaty on disability rights amid GOP opposition.” The Guardian, December 4, 2012.

Autistic Self Advocacy Network. “2016 ASAN Gala: Speech by Ari Ne’eman.” December 12, 2016.

Berne, Patty. “Disability Justice – a working draft by Patty Berne.” Sins Invalid. June 9, 2015. “Tammy Duckworth Biography.” Last modified August 3, 2020.

Cameron, Anita. “A Brief History of ADAPT and Who We Are.” Musings of An Angry Black Womyn (blog). Accessed August 10, 2020.

Center for Disability. “A Short History of Justin Dart, Jr., ‘Father’ of the ADA.” Accessed August 10, 2020.

Chamberlin, Judi. On Our Own: Patient-Controlled Alternatives to the Mental Health System. Lawrence, MA: National Empowerment Center, 2012.

Collaboration to Promote Self-Determination. “Background on Section 14c of the Fair Labor Standards Act.” February 2014.

Cone, Kitty. “Short History of the 504 Sit in.” Disability Rights Education & Defense Fund. Accessed August 10, 2020.

Connelly, Eileen AJ. “Overlooked No More: Brad Lomax, a Bridge Between Civil Rights Movements.” New York Times, July 8, 2020.

Disability Action Center. “Wade Blank.” Accessed August 10, 2020.

Disability Social History Project. “Black Panthers saved the 504 sit-in.” Last modified August 19, 2019.

Edelstein, Wendy. “Ed Roberts, disability-rights leader and Cal alum, gets his own state day.” Berkeley News, July 27, 2010.

Elliott, Timothy R. and Paul Leung. “Vocational Rehabilitation: History and Practice.” In Handbook of Vocational Psychology, edited by W. Bruce Walsh and Mark L. Savickas. Mahwah, New Jersey: Lawrence Erlbaum Publishers, 2005.

Employer Assistance and Resource Network on Disability Inclusion. “The Rehabilitation Act of 1973 (Rehab Act).” Accessed August 10, 2020.

Ervin, Mike. “An Oral History of the Capitol Crawl.” New Mobility, July 1, 2020.

Federal Communications Commission. “21st Century Communications and Video Accessibility Act (CVAA).” Last modified December 31, 2019.

Fink, Sheri. “U.S. Civil Rights Office Rejects Rationing Medical Care Based on Disability, Age.” New York Times, March 28, 2020.

Frida Kahlo Foundation. “Biography of Frida Kahlo.” Accessed August 9, 2020.

Gallagher, Hugh Gregory. FDR’s Splendid Deception. St. Petersburg, FL: Vandamere Press, 1999.

Gallaudet University. “About: Deaf President Now.” Accessed August 10, 2020.

Gardiner, Finn. “Harriet Tubman: Neurodivergent Black Excellence.” NOS Magazine, February 13, 2018.

Greg Hlibok, interview with author via email, April 2020.

Greiwe, Elizabeth. “How an ‘ugly law’ stayed on Chicago’s books for 93 years.” Chicago Tribune, June 23, 2016.

Goldberger, David and Paul K. Longmore. “Political Movements of People with Disabilities. The League of the Physically Handicapped, 1935-1938.” Disability Studies Quarterly, vol. 17, no. 2 (1997), 94-98.

Herman, Ellen. The Romance of American Psychology: Political Culture in the Age of Experts. Berkeley: University of California Press, 1995.

Heumann, Judith and Kristen Joiner. Being Heumann: An Unrepentant Memoir of a Disability Rights Activist. Boston: Beacon Press, 2020.

Hughes, Jessica M.F. “Increasing Neurodiversity in Disability and Social Justice Advocacy Groups.” June 2016.

International Paralympic Committee. “History of the Paralympic Movement.” Accessed August 10, 2020.

International Paralympic Committee. “Stoke Mandeville & New York 1984 Paralympic Games.” Accessed August 10, 2020.

Jennifer Keelan-Chaffins, interview with author via phone, July 2020.

Johnson, Roland. Lost in a Desert World: An Autobiography. Philadelphia: Speaking for Ourselves. 1994.

Kearney, John R. “Social Security and the ‘D’ in OASDI: The History of a Federal Program Insuring Earners Against Disability.” Social Security Office of Policy. August 1, 2006.

Kersten, Luke. “Indiana Passes First Eugenic Sterilization Statute in the United States.” The Eugenics Archives. March 14, 2014.

Kim, Eun Kyung. “New White House receptionist is a West Wing pioneer: ‘Deaf people can do anything’.” Today, March 27, 2015.

Leah Harris, interview with author via video call, June 2020.

Library of Congress. “National Disability Employment Awareness Month.” October 1, 2019.

Liebowitz, Cara. “Here’s What Neurodiversity Is – And What It Means For Feminism.” Everyday Feminism, March 4, 2016.

Loretta Claiborne, interview with author via email, August 2019.

Mansky, Jackie. “P.T. Barnum Isn’t the Hero the “Greatest Showman” Wants You to Think.” Smithsonian Magazine, December 22, 2017.

Max Barrows, interview with author via video call, May 2020.

Mingus, Mia. “Changing the Framework: Disability Justice.” Leaving Evidence (blog), February 12, 2011.

Minnesota Governor’s Council on Developmental Disabilities. “Ed Roberts, Activist – 60 Minutes Segment with Harry Reasoner.” Accessed August 10, 2020.

National Archives. “Transcript of Press Release, Proclamation for National Employ the Handicapped Week.” September 22, 1945.

National Council for Behavioral Health. “Community Mental Health Act.” Accessed August 9, 2020.

National Council on Independent Living. “About Independent Living.” Accessed August 10, 2020.

National Disability Rights Network. “Overview of concerns with H.R. 620, the so-called ADA Education and Reform Act of 2017.” Last modified February 2017.

National Federation of the Blind. “History and Governance.” Accessed August 9, 2020.

Nichols, John. “Disability-Rights Activists Are the Real Heroes of the Health-Care Fight.” The Nation, July 28, 2017.

Olmstead Rights. “Sue, Lois, and Elaine.” Accessed August 10, 2020.

Paralyzed Veterans of America. “Our History.” Accessed August 9, 2020.

Perry, David. “‘That’s Just the Life of a Warrior’: How Disability Activists Are Playing the Long Game Under Trump.” Pacific Standard, January 22, 2018.

Prioleau, Brian. “JFK’s Legacy of Community-Based Care.” Substance Abuse and Mental Health Services Administration, April 19, 2016.’s-legacy-community-based-care.

Reimann, Matt. “Willowbrook, the institution that shocked a nation into changing its laws.” Timeline, June 15, 2017.

Salam, Maya. “Ali Stroker Makes History as First Wheelchair User to Win a Tony.” New York Times, June 9, 2019.

Sara Luterman, interview with author via video call, May 2020.

Self Advocacy Online. “Part 1. The future of self-advocacy: How are self-advocacy groups doing in the United States?” Accessed August 10, 2020.

Serres, Chris. “Inclusion Pays Off.” Star Tribune, November 11, 2015.

Sinclair, Jim. “Don’t Mourn For Us.” In Loud Hands: Autistic People, Speaking, Edited by Julia Bascom. Autistic Self Advocacy Network, 2012.

Sins Invalid. Skin, Tooth, and Bone: The Basis of Movement Is Our People, 2nd edition. 2019.

Smith, s.e. “Judi Chamberlin: Mad Pride and the Fight Against Institutionalizing Women.” Rooted in Rights (blog), March 29, 2018.

Social Security Administration. “Social Security Act of 1935 – Title V – Grants to States for Maternal and Child Welfare.” Legislative History. Accessed January 30, 2020.

Social Security Administration. “Legislative History of the Social Security Disability Insurance Program.” Accessed January 30, 2020.

Social Security Administration. “Vocational Rehabilitation Act Amendments.” October 1954.

Special Olympics. “1968 Games.” Accessed August 9, 2020.

The Jenny Hatch Justice Project. “The Justice for Jenny Trial.” Accessed August 10, 2020.

United Nations. “World Down Syndrome Day.” Accessed August 10, 2020.

United States Access Board. “Architectural Barriers Act.” Accessed August 9, 2020.

United States Access Board. “Rehabilitation Act of 1973.” Accessed August 10, 2020.

United States Department of Education. “History: Twenty-Five Years of Progress in Educating Children with Disabilities Through IDEA.” Last modified July 19, 2007.

United States Department of Justice. “A Guide to Disability Rights Laws.” Last modified February 24, 2020.

United States Department of Veterans Affairs. “History – VA History.” Last modified August 6, 2018.

United States Office of Disability Employment Policy. “Disability: An Important Part of America’s Heritage: Defining the Next Generation.” January 2009.

Walker, Nick. “Neurodiversity: Some Basic Terms & Definitions.” Neurocosmopolitanism (blog), September 27, 2014.

Chapter 4

ADA National Network.

Autistic Self Advocacy Network. “Anti-Filicide Toolkit.” Last modified January 2020.

Barbarin, Imani. “The Life and Death Of Seven Bridges.” Disability Visibility Project (blog), February 17, 2019.

Bureau of Justice Statistics. “Crime Against Persons with Disabilities, 2009-2015 – Statistical Tables.” July 2017.

Campbell, Alexia Fernández. “A loophole in federal law allows companies to pay disabled workers $1 an hour.” Vox, May 3, 2018.

Dejean, Ashley. “Many People With Disabilities Are Being Paid Way Below the Minimum Wage, and It’s Perfectly Legal.” Mother Jones, August 8, 2017.

Devita-Raeburn, Elizabeth. “The controversy over autism’s most common therapy.” Spectrum, August 10, 2016.

Diament, Michelle. “Netflix Defends Use Of ‘Retarded.’” Disability Scoop, September 24, 2018.

Dickey, Megan Rose. “Lyft settles DOJ lawsuit alleging violation of Americans with Disabilities Act.” TechCrunch, June 22, 2020.

Disability Day of Mourning. “Index by Year.” Accessed September 7, 2020.

Disability Science Review. “The Curb Cut Effect: How Making Public Spaces Accessible to People With Disabilities Helps Everyone.” December 11, 2016.

Evans, Dominick. “I don’t personally like dismissing people for being ableist.” Twitter, May 23, 2020.

Fingas, Jon. “Uber faces lawsuit for denying rides to woman with service animal.” Engadget, March 20, 2018.

Harrell, Sandra, Amy Judy, and Nancy Smith. “How Safe are Americans with Disabilities?” Vera Institute of Justice, April 2017.

Job Accommodation Network.

Ladau, Emily. “Disability Rights Are Conspicuously Absent From The Women’s March Platform.” The Establishment, January 16, 2017.

Mak, Aaron. “The Supreme Court Denies Domino’s Petition in a Win for Disability Rights.” Slate, October 7, 2019.

National Council on Disability. “IDEA Series: The Segregation of Students with Disabilities.” February 7, 2018.

National Council on Disability. “Institutions: Definitions, Populations, and Trends.” Last modified September 19, 2012.

National Council on Disability. “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children.” September 27, 2012.

Ouch Blog. “First there was racism and sexism, now there’s ableism.” BBC, June 16, 2014.

Bialik, Kristen. “7 facts about Americans with disabilities.” Pew Research Center, July 27, 2017.

Public Justice. “Duggan et al. v. Adelante Development Center, Inc.” Accessed August 10, 2020.

Taussig, Rebekah. Sitting Pretty: The View from My Ordinary Resilient Disabled Body. New York: HarperOne, 2020.

Time’s Up. “About.” Accessed August 10, 2020.

Walker, Ameena. “Here’s what the NYC subway map looks like with just accessible stations.” Curbed New York, September 25, 2017.

Wong, Alice, editor. Disability Visibility: First-Person Stories from the Twenty-First Century. New York: Vintage Books, 2020.

Chapter 5

Andrew Gurza, interview with author via email, March 2020.

Anjali Forber Pratt, interview with author via email, April 2020.

Autistic Self Advocacy Network, Welcome to the Autistic Community. Washington, D.C.: The Autistic Press, 2020.

Caplan, Reid. “What Is Sensory Processing Like For Autistic People?” Thinking Person’s Guide to Autism (blog), October 28, 2019.

Conchita Hernández Legorreta, interview with author via email, August 2020.

Ellen Ladau, interview with author, August 2020. West Babylon, NY.

Eva Sweeney, interview with author via email, August 2020.

Findlay, Carly. Say Hello. Sydney: HarperCollins Australia, 2019.

Julia Bascom, interview with author via email, April 2020.

Kings Floyd, interview with author via email, April 2020.

Lacey Henderson, interview with author via email, April 2020.

Leah Harris, interview with author via video call, June 2020.

Maddy Ruvolo, interview with author via video call, June 2020.

Marc Ladau, interview with author, August 2020. West Babylon, NY.

Pamela Schuller, interview with author via email, April 2020.

Tucker, Kay. “Top Ten Tips When Using an Interpreter.” Paraquad, April 8, 2015.

Walei Sabry, interview with author via email, May 2020.

Chapter 6

Angel Giuffria, interview with author via Twitter messages, April 2020.

Colón, Ana. “Model Aaron Philip Manifested Her Dream—With a Tweet.” Glamour, September 5, 2019.

Desmarais, Sarah L., Richard A. Van Dorn, Kiersten L. Johnson, Kevin J. Grimm, Kevin S. Douglas, and Marvin S. Swartz. “Community Violence Perpetration and Victimization Among Adults With Mental Illnesses”, American Journal of Public Health 104, no. 12 (December 1, 2014): 2342-2349.

Dickens, Charles. A Christmas carol: the original 1843 manuscript. Delray Beach, FL: Levenger Press.

Eloise, Marianne. “As an autistic person, Netflix’s Love on the Spectrum is painful to watch.” Cosmopolitan UK, August 5, 2020.

Ervin, Mike. “The Jerry Lewis Telethon Could Have Had a Happy Ending.” The Progressive, August 23, 2017.

Garland-Thomson, Rosemarie. “Staring at the Other.” Disability Studies Quarterly 25, no. 4. (Fall 2005).

GLAAD. “Where We Are on TV – 2019-2020.”

Haley Moss, interview with author via Twitter message, August 2020.

Holcomb, Nan. Patrick and Emma Lou. Jason & Nordic Pub, 1989.

Johnson, Mary. “A Test of Wills: Jerry Lewis, Jerry’s Orphans, and the Telethon.” The Disability Rag, September 1992.

Lamour, Joseph. “Nyle DiMarco Won ‘America’s Next Top Model,’ and Now He Wants to Change the World.” MTV, December 8, 2015.

Lu, Wendy. “Jillian Mercado On Being A Disabled Latina Model: ‘We’re Not Going Anywhere.’” HuffPost, September 16, 2019.

Melissa Blake, interview with author via email, May 2020.

Miller, Anna Medaris. “One of the world’s first models with Down syndrome still can’t get signed by a high-end agency.” Insider, February 7, 2020.

Moyes, Jojo. Me Before You. New York: Penguin Books, 2012.

O’Connell, Ryan, creator. Special. That’s Wonderful and Stage 13. Netflix,

Ryan Haddad, interview with author via phone, April 2020.

Smith, s.e. “Don’t Worry, It’s Fine When It Happens to Crazy People!” Disability in Kidlit (blog), December 20, 2013.

Stone, Shomari. “Virginia Girl in Wheelchair Meets Ulta Model She Gazed at in Viral Photo.” NBC Washington, September 24, 2019.

Tuder, Stefanie. “Qdoba Employee Feeds Disabled Customer in Random Act of Kindness.” ABC News, May 14, 2015.

Velez, Adriana. “Teens Crown Disabled Girl Homecoming Queen & Warm Our Hearts (VIDEO).” Cafemom, September 26, 2013.

Young, Stella. “I’m not your inspiration, thank you very much.” Filmed April 2014 at TEDxSydney, Australia. Video, 9:04.


Charlton, James I. Nothing About Us Without Us: Disability Oppression and Empowerment. Oakland, CA: University of California Press, 1998.

Mingus, Mia. “The Four Parts of Accountability: How To Give A Genuine Apology Part 1.” Leaving Evidence (blog), December 18, 2019.

Naomi Ortiz, interview with author via email, May 2020.

Reyma McCoy McDeid, interview with author via video call, May 2020.