Blog

Celebrating the Americans with Disabilities Act by Curbing the Heroes

I have never known life without the Americans with Disabilities Act (ADA), which became law on July 26, 1990. My birthday is just one year and three days after this. In countless ways, the ADA has been a blessing. Places that my mom and my uncle (who are also disabled) could not have gone while […]

Why My Dad Isn’t a Hero or a Saint: A Father’s Day Tribute

Whether they admit it out loud or not, people always wonder how my dad, Marc, “does it.” I can hear it in the tone of a person’s voice; I can see it in their facial expressions. How does my dad handle being the able-bodied husband and father to two disabled women? Everyone from family members […]

A Mother’s Day Reflection on Mother-Daughter Disability

After spoiling my plans and letting my mom, Ellen, in on her surprise Mother’s Day post, I realized I had no idea how to live up to the promise of writing one. How could I find words that explain what it means to have been raised by someone whose being is connected with mine down […]

I Am More Than An Empty Wheelchair: Speaking Up Against Ableism

When you want to address a person, the next step should be to find a way to convey your message that person, right? So, if your message is intended for me, but you convey it to me by addressing a person I’m with who appears to be non-disabled, it makes me wonder if you perceive […]

Disability is NOT Derogatory – Why You Should Spread the Word to End the Word

“Don’t you think she’s being retarded?” I heard the words coming out of the person’s mouth and realize she’s looking at me expectantly, waiting for me to chime in and nod in agreement. “Don’t you think…” What do I think? I wouldn’t dare utter the word “retarded” in response. I could answer with a simple […]

Design Your Own Baby? – A Genetic Ethics Dilemma

Time and time again, I’ve asserted that I would never want my disability to be “cured.” If the technology to reverse my genetic make-up and eradicate the source of my disability became possible in my lifetime, I’d be even further than last in line to sign up for it. And while I hold fast to […]